Hopeless. Is this all in my head? Endo Imposter Syndrome: Diagnosed with Myofascial Pelvic Pain Syndrome while trying to push for a lap.

2021.10.19 04:19 chickenisbaby Hopeless. Is this all in my head? Endo Imposter Syndrome: Diagnosed with Myofascial Pelvic Pain Syndrome while trying to push for a lap.

I'll start with this: I've been desperate for an explanation and solution for my pain for over a decade. I'm 27 and have had sciatica since I was 14. Over time I have given up on finding solutions for my pain and have become more desperate for an explanation for it. My own primary care doctor asked me about endo (I didn't bring it up when I got a new one because I'd been brushed off before). I approached my OBGYN and she just kept throwing BC at me. I finally got a surgical endo specialist to talk to me only to refer me to a pelvic pain specialist for Myofascial Pelvic Pain Syndrome. She said she could look for endo but if she finds a little and takes it out, it may do nothing for me to alleviate my pain and in 30-50% of patients she opens people up and "finds nothing anyways."
She said she wanted to turn this over to the specialist and if the specialist eventually thinks I'm a surgical case to send me back. I don't know if this was just to placate me. I don't know if I'm dealing with two comorbid conditions (both endo and MPPS) or just MPPS making me think I have endo or endo causing MPPS. I have no fucking clue.
Symptoms/History
So my physical experience/symptoms seem to echo a lot of what I read on here and endometriosis symptoms in general. I have been on and off fighting for doctors to listen to me and look for endo. Each time and each doctor would shrug and say, "Maybe. But regardless the treatment is birth control." I tried every form of BC except for Depo before getting the Mirena IUD. I swear I can feel the Mirena and I feel like it pinches despite being in place. I can't tell if the sharper cramping I've been getting over the past few years is just because of the Mirena or something else.
Anyways, I can't take other birth control because I have PMDD and it makes me suicidal. Mirena has improved my periods dramatically (I don't puke anymore and I'm not writhing in a complete hellscape of pain for more than a few hours). I don't bleed but I experience sharp doubling-over pain during ovulation and what is theoretically my period. My sciatica also goes off at this time, I get flu-like symptoms, I'm drained, I am in bed with no energy for at least 1/3 of the month every month. Also, I take 300mg of Wellbutrin for depression regularly. I have had sciatica for over a decade and my lower back always feels fatigued and like it's burning. If I walk, stand, or sit for too long my sciatic pain gets activated. I always have to pee and sex is painful.
I found an endo specialist–the only one at that takes my insurance in my area, in fact. I had a virtual consult with her after getting an ultrasound that showed a "probable dermoid cyst" that is "clinically insignificant" despite getting random attacks of hyper-localized sharp pain exactly where it turns out the cyst is. So she told me that the cyst isn't causing my (sharp and specific) pain and she thinks I have Myofascial Pelvic Pain Syndrome.
So she sent me to a pelvic pain specialist who is trying to get me to go back to pelvic floor physical therapy (I went once before a few years ago and didn't return because of the discomfort) and regular PT. I'm down to try and I'll even try meds (already tried gabapentin but had to stop because it gave me intrusive suicidal thoughts almost instantly) but I have skepticism.
Is this nebulous condition really the source of my pain? This has been over a decade. The suggested PT for this condition never has done anything for me. If one more person tells me to do a pigeon stretch or figure four I'm going to lose it. It hasn't helped for a decade, why would it suddenly work now? There have been times in my life where I was doing yoga, running 15-20 miles in a week, eating well, resting and times where I have been sedentary and the pain cycle is the same. I exist in brain fog and recurring bouts of pain and extreme fatigue between short bursts of "normal" living.
Is there anyone else out there who has been turned away by a reputable specialist (I found this surgeon recommended on this sub)? Anyone else with symptoms masquerading as potential endo? Do I need to push harder for a lap or do I need to drop pursuit of this diagnosis? Or do I go through 4-6 months of PT and return if it doesn't help? I just don't understand why no one is addressing the sharp, localized, and cyclical components of the pain... I feel so discouraged and like I don't know where to go. Like, do I even belong on this sub?
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- Empreender de alguma forma novamente (focado em e-commerce);
Se alguém faz algo relacionado a esses tópicos e tiver alguma visão melhor sobre, por favor me ajudem, estou bem indeciso qual rumo seguir quando coloco felicidade x remuneração na balança.
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On my new PC build, I wanna do the same where I cover the whole thing when not in use (and once it cools). A t shirt is too small to cover the whole 4000D case lol.
What’s a good dust cover?
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2021.10.19 04:19 phillythrowaway33 [M4F] Winter is coming, so should you...

Well-educated, professional, respectful and in very good shape older guy looking for women who are interested in chatting, lol'ing, drinks and fun. I can be dominate if that's your thing and also love giving oral in case you need, want or crave it, or like the idea of being with an older guy. No pressure, move at your pace. If I've piqued your interest or curiosity please include in your reply a little something about yourself and why you are responding.
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